COLLECTION METHODS - ARCHIVE

Definition

Accuracy of Premorbid Data - How accurate are the answers from the person with brain injury/family member/significant other to the premorbid history questions? - “In your recollection of events prior to the injury, how accurate do you believe your answers to these questions are?”

Form

[ ] Form 1
[X] Form 2

Source

Data collector to complete Accuracy of Premorbid Data to be completed by best source

Details

Use code “4” for both [IntMthdInd] and [IntMthdSo] if most of the data were obtained from a secondary source.

These data must have originally been collected within window and must be high quality.

Variables

Form Type

Variable

ID

Question

History

Form 1

AccuracyP

3334

In your recollection of events prior to your/the injury, how accurate do you believe your answers to these questions are?

1997-04-01 - Variable Added
2003-01-01 - Variable Removed

Form 1

EntryDate

Date Form 1 data entered:

1989-10-01 - Variable Added
2023-07-01 - Variable Removed

Form 2

EntryDate

3698

Date Form 2 data entered:

1989-10-01 - Variable Added
2023-07-01 - Variable Removed

Form 2

IntMthdInd

716

Method of Data Collection - Person With TBI

1989-10-01 - Variable Added
2017-01-15 - Variable Removed

Form 2

IntMthdSO

717

Method of Interview Data Collection - Family Member/Significant Other

1989-10-01 - Variable Added
2017-01-15 - Variable Removed

Form 2

NoDataInd

727

Reason Person with TBI Not Providing Data

1989-10-01 - Variable Added
2017-01-15 - Variable Removed

Form 2

NotprovSO

3914

Reason Family Member/Significant Other Not Providing Data

1989-10-01 - Variable Added
2003-01-01 - Variable Removed

Form 2

SO

770

Identity of Significant Other

1989-10-01 - Variable Added
2017-01-15 - Variable Removed

Codes and Values

ID 3334

For Form: [Form 1]
For Variables: [AccuracyP]

Code

Description

0

Variable Did Not Exist

1

Not At All Accurate

2

Somewhat Accurate

3

Mostly Accurate

4

Very Accurate

6

No Premorbid Data

9

Unknown

ID NA: No codes found.
ID 3698: No codes found.
ID 3914

For Form: [Form 2]
For Variables: [NotprovSO]

Code

Description

1

No Appropriate Significant Other

4

Not Available ( Not at home, in the hospital or jail, is working or in school and not available for interview )

5

Stated Refusal

6

No Response ( Center staff know the whereabouts of the family member/significant other of person with brain injury but he/she has not responded to contact )

7

Lost To Follow-up ( Unknown whereabouts of family member/significant other of person with brain injury )

8

Language Barrier ( Family member/significant other of person with brain injury does not speak English and no interpreter was available )

55

Not Applicable: Funding not available ( No funding )

66

Patient Expired

77

Not applicable: Interview not required

88

Not Applicable: Data provided by other family member ( Interview data was provided by family member/significant other of person with brain injury )

99

Unknown ( Reason why no interview data was provided by family member/significant other of person with brain injury, or unknown reason why no follow-up with family member/significant other of person with brain injury was attempted. )

ID 716

For Form: [Form 2]
For Variables: [IntMthdInd]

Code

Description

1

In-person Interview

2

Telephone Interview

3

Questionnaire Mailing

4

Data Obtained From Secondary Source

6

Variable Did Not Exist

7

Not Applicable: Funding not available

8

Not Applicable: No Data Provided by Person with TBI

ID 717

For Form: [Form 2]
For Variables: [IntMthdSO]

Code

Description

1

In-person Interview

2

Telephone Interview

3

Questionnaire Mailing

4

Data Obtained From Secondary Source

6

Variable Did Not Exist

7

Not Applicable: Funding not available

8

Not Applicable: No Data Provided by Significant Other

ID 727

For Form: [Form 2]
For Variables: [NoDataInd]

Code

Description

3

Physically or Cognitively Unable

4

Not Available ( Not at home, in the hospital or jail, is working or in school and not available for interview )

5

Stated Refusal

6

No Response to Contact ( Center staff know the whereabouts of the person with brain injury but he/she has not responded to contact )

7

Lost to Follow-up ( Unknown whereabouts of person with brain injury )

8

Language Barrier ( Person with brain injury does not speak English and no interpreter was available )

9

Expired

66

Variable Did Not Exist

77

Not Applicable: Funding not available ( No funding )

88

Not Applicable: Data was provided ( Interview data was provided by person with brain injury )

99

Unknown ( Reason why no interview data was provided by person with brain injury, or unknown reason why no follow-up was attempted. )

ID 770

For Form: [Form 2]
For Variables: [SO]

Code

Description

1

Spouse

2

Parent(s)

3

Sibling

4

Adult Child

5

Boyfriend, Girlfriend, Fiancee

7

Other Relative

8

Friend

9

Professional Caregiver

77

Other

88

Not Applicable: No family or significant other data

History

Date

Description

1996-01-01

Added NOTE : clarified that this variable refers to interview data collection only.

2001-08-20

Added NOTE : about how to code if multiple methods are used to collect data.

2004-01-01

Added CODE : '7 - Not Applicable: Funding not available'

2004-04-01

Added NOTE : about code 7 not being in Form II.

2006-01-01

Added CODE : '4 - NA-data obtained out of window from secondary source'.

2006-01-01

Added CODE : '6 - Variable did not exist at time data were collected'.

2006-04-01

Added NOTE : "All possible effort is to be made to collect data from the participant or an SO. Data from other sources (as indicated by code "4" ) should be entered only if: (1)it has not been possible to obtain the data from the person or SO during the follow-up window, (2) those data were originally collected during the follow-up window, and (3) the data meet TBIMS standards for data collection procedures and data quality standards'.

2013-10-01

Added NOTE : "Interviewers should use their best judgment in determining whether a significant other has enough current knowledge of the participant to accurately answer follow-up questions."